Kristie DeMarco BS

President, Global DARE Foundation

Passionate and results-driven professional with over 25 years of experience in the financial sector, coupled with a personal commitment to advancing causes related to rare genetic disorders. As the President of the Global DARE Foundation, I channel my analytical problem-solving skills and leadership to create a positive impact on the lives of individuals affected by Refsum disease. My unique position as both a seasoned professional leader and a patient with Refsum disease fuels my dedication to driving initiatives that promote awareness, research, and support for this rare condition.